Amanda Hebblethwaite was literally woken from a sound sleep one night by a drive to help others. “I woke up in the middle of the night one night and thought about how awful it would be not to be able to have your parents be able to give you gifts for Christmas,” Hebblethwaite said. “The next morning I talked to my mom about it, and she suggested I start a donation drive for some place like the Rescue Mission.” Hebblethwaite ended doing just that. The Liverpool High School junior is conducting a toy drive for the Rescue Mission, collecting new and gently used toys for children in need.
The smell of Laurie Farrell’s daughter is starting to fade from the box of mementos she brought home from the hospital five years ago. The contents of the hand-painted box — a Beanie Baby, a receiving blanket, a small knitted cap, a crocheted blanket, a tiny gold ring and a bracelet — is all Farrell has left of her little girl. Emily was stillborn in November of 2008. “These are things she wore, and these are amazing mementos for me as a parent,” said Farrell, of Onondaga Hill. “Every year when I open it up on the anniversary date, I can still smell her.”
The DSA of CNY offers a number of activities for families of those with Down syndrome, but its biggest event — and the only one it offers that’s open to the entire community — is the Buddy Walk, which celebrates its 15th year this fall. “At our Buddy Walk, we do not focus on the therapies, doctor appointments, etc., that is a part of their daily life. We celebrate the joy of having them in our lives and family,” Bottego said. “Most of the committee members have worked on the Buddy Walk from the beginning. We have volunteers who come back year after year because it such an uplifting event.” The Buddy Walk will take place on Sunday, Sept. 29 at Long Branch Park in Liverpool. Registration starts at 9:30 a.m.; walkers who have pre-registered can pick up their preordered shirts. Walk-in registration is also available. T-shirts are available to purchase. Children’s games are open from 9:30 a.m. to 2 p.m. and only shut down while the walk is in progress. Attendees can purchase raffle tickets The walk starts at 10:30 a.m. The walkers follow the path out of the Longbranch Park area into the Willow Bay section of Onondaga Lake Park.
As it turned out, Erin Hannagan was one of the lucky ones. Hannagan was 16 when she was diagnosed with Hodgkin’s disease May 25, 1993. But she would beat the disease. “I had been coughing for quite some time and had been diagnosed with multiple ‘colds,’” Hannagan recalled. “It finally got so bad that my mom took me to an urgent care center where a chest X-ray was done that revealed a large mediastinal [cavity containing the heart, esophagus, trachea, thymus and aorta] mass.”
Maureen Humphrey lost her child to cancer, but not in the traditional sense. Humphrey was pregnant in June of 2001 when she learned that she had clear cell adenocarcinoma, a rare and aggressive cervical cancer that necessitated a radical hysterectomy as well as the removal of 28 lymph nodes. “No one ever expects that cancer or illness will happen to them, and we certainly felt the same way,” said Susan Bertrand of Baldwinsville, Humphrey’s older sister. “Maureen's cancer diagnosis was a shock, but worse than the diagnosis was the grief she felt knowing she was going to lose her unborn child and never again have the chance to conceive or carry her own child again.”
Chris Arnold and Ellen Yeomans thought a bone marrow transplant would cure their daughter’s leukemia. Paige Yeomans Arnold was diagnosed with chronic myelogenous leukemia (CML) in June of 1993. The cancer is typically found in adults, not children, who are more likely to get acute myelogenous lymphoma (AML) or acute lymphocytic lymphoma (ALL). At first, she was treated with an experimental drug called Interferon, which put her into a brief remission. But a few months later, the cancer returned, leaving the family with just one choice: a bone marrow transplant.
It is estimated by the Centers for Disease Control and Prevention that autism has risen to one in every 88 births in the United States. In order to raise awareness about the programs and services available to families affected by autism, the New York State Senate has commemorated April 2013 as Autism Awareness Month.
When Caryn Daher’s son, Jon, was little, he was into everything — even more than the average toddler. “He was… constantly bumping and crashing into things and people and seeking-jumping type activities,” said Daher, a Cicero resident. “He had difficulty in regulating and responding to movement activities appropriately. It went far beyond a ‘busy’ toddler.” In addition, Jon struggled with a variety of sounds, often withdrawing or avoiding certain situations because of the noise level. He had higher-than-average sensitivities to food, temperature and touch. In addition, his speech was delayed. It was that delay that led to help for his other issues. Through his speech therapist, Jon was diagnosed with Sensory Processing Disorder.
Dear Charlotte, Daniel, Olivia, Josephine, Ana, Dylan, Madeline, Jesse, Catherine, Chase, James, Grace, Emilie, Jack, Noah, Caroline, Jessica, Avielle, Benjamin and Allison, You were taken too soon, that is true. It is also true that you have experienced an unimaginable, horrifying end to your promising lives. I am so truly sad that this world will not experience you as teenagers, young adults, mothers, fathers, aunts, uncles, grandfathers and grandmothers. You didn’t get your chance to fulfill the promise in your shining eyes and wide grins depicted in the photos lovingly treasured and shared by your families.
This spring, in conjunction with the Preeclampsia Foundation, Lorelle Lashway is coordinating the first-ever Syracuse Promise Walk at Onondaga Lake Park. The walk will take place on Saturday, June 1, 2013. Registration opens to the public on Jan. 1 at promisewalk.org/Syracuse, and costs $20 for adults and $10 for children 12 and under.
On July 26, 1990, President George H.W. Bush signed landmark legislation that would change the lives of the disabled nationwide. The Americans with Disabilities Act of 1990 (ADA) prohibits discrimination against people with disabilities in employment, transportation, public accommodation, communications, and governmental activities. The ADA also establishes requirements for telecommunications relay services.
Enable, which is also known as the United Cerebral Palsy and Handicapped Children's Association of Syracuse Inc., provides clinical, educational, personal and community services to people with disabilities all over Central New York. The agency serves more than 1,500 adults and children each year.
For those in need, there is such a thing as a free lunch. This summer, sites across the country will provide free, nutritionally balanced meals to any child under the age of 18 who qualifies for free or reduced lunch during the school year. There are some 50 sites in Onondaga County alone.
With expected hot temperatures heading to the area, Onondaga County Executive Mahoney and County Parks are pleased to announce they will be opening the beaches a day ahead of schedule at 11 a.m. Friday, May 25.
CNY Real Diaper Circle will take part in an international cloth diaper changing event taking place on Saturday, April 21, at Shoppingtown Mall.